September 2020

Become a Tyne & Wear Sight Loss Council member

Are you living in Tyne & Wear, blind or partially sighted and interested in advocating for others?

Join our community of blind and partially sighted advocates and help support visually impaired people in your area to live the lives they want to lead.

What does a Sight Loss Council member do?

As a Sight Loss Council member your duties may include putting forward local issues affecting your community at Sight Loss Council meetings (ie pavement parking, guide dog refusals etc) or taking part in accessibility testing sessions, forums, seminars and contributing to public consultations.

If you’re interested in gaining advocacy experience, you are a great communicator and confident with technology (or willing to learn), then we want to hear from you!

What do the Sight Loss Councils do?

Sight Loss Councils are currently expanding their reach across England to give people who are blind or partially sighted the opportunity to influence positive change and improve services at a national and local level.

Each Sight Loss Council aims to make a difference by representing the voice of blind and partially sighted people in the key areas of health, employment, education, transport, technology, and sport. If you have a particular interest in any of these areas, please let us know

Examples of Sight Loss Councils’ work include:

· providing GP Surgeries in Bristol with visual awareness training

· working with StageCoach on new audio-visual announcements on their buses in Gloucestershire

· providing accessibility feedback on a healthcare app in Birmingham

· running accessibility workshops with the Apple store in Liverpool.

Where do we work

We currently have Sight Loss Councils in Bristol, Gloucestershire, Birmingham, Black Country, Merseyside, Greater Manchester and we are launching two brand new SLCs in Tyne and Wear and Bedfordshire.

Why volunteer with us?

We will provide you with core training and ongoing opportunities to learn and develop in your role.

Skills you may learn include advocating for yourself and others, improving your confidence in public speaking, organising events and much more. We’ll focus on your strengths and interests and help you build upon them. These are all skills that will really help boost your CV if or when applying for jobs!

How do I join?

To find out more about becoming a Tyne & Wear Sight Loss Council member, download the volunteer role description below and email to let us know which Sight Loss Council you are interested in joining.

Please click the following link to download the Volunteer Role Description.

September 2020

Take part in a vital study into the lives of blind and partially sighted people.

RNIB, Guide Dogs and Thomas Pocklington Trust are jointly conducting an invaluable research to understand the realities of life for blind and partially sighted people in the UK.

The study will help to improve support and services for those with a sight impairment.

For further information or to register to take part in the survey, please click on the image below.

Take part in a vital study into the lives of blind and partially sighted people.

July 2020

North East Macular Society – Patient Information days

The Macular Society have organised 2 information Days in the North East for patients. This will be held in August via teleconferencing. Please see below from Julie Swan (Regional Manager) for further details.

Patient Information Days

Stephanie Cairns, BSc(Hons) MCOptom Pgd Cert.Clinical Optometry & Chair NTW Local Optical Committee, will talk about the support available during Covid 19 and how to access help if you need it.

Friday 7th August 2020 at 10.30am will be Wet Macular specific – benefits of continuing treatments and changes to eye clinics to help people continue treatment during this time.

Friday 21st August at 10.30am will be Dry Macular specific.

If you would like to attend please register beforehand with Julie Swan by calling 07904 315605 and so she can send you details on how to join. Also you can submit questions to Julie before the events so she can forward to Stephanie Cairns.


June 2020

Telephone enquiries – office hours

For anyone requiring support or have an enquiry, please call 0191 2327292. Unfortunately staff members will only be available to take phone calls for the following times:

  • Tuesday 11am – 3pm
  • Thursday 11am – 3pm

All other days or times you can either leave a message on our answer machine and we will try to get back to you as soon as possible or you can continue to ring the following mobile numbers we have already provided:

  • Sue 07958171431
  • Jude 07958171424
  • Jacqui 07506720593

Take care and stay safe.

Cancellation of the Newcastle Vision Support (NVS) 2020 Annual General Meeting

Due to the Coronavirus the Board of Trustees of NVS have voted to cancel the 2020 AGM which was scheduled to take place in July.

Further details can be found on the letter which all our service users should have received by post. If you have not received a letter and would like a copy then please contact the office on 0191 232 7292. Due to the current situation staff will only be in the office on Tuesday and Thursday 11am – 3pm for telephone enquiries.

Message from Sue, CEO

I hope you are all staying safe during these challenging times.

As you know staff have been working from home, ringing members for regular chats and when possible helping with queries. They have all done a great job and on behalf of you all I would like to thank them all for their dedication and commitment to helping others.

We are now starting to move towards working from the office in line with social distancing. We will not all be in together so we will continue to work from home on the days we are not in the office.

I know many of you are wanting to get back to groups etc and are missing the social aspects which, under normal circumstances we provide. We are following Government guidelines so unfortunately we can not start up the groups at the moment, but we are looking at alternative methods to enable you to meet up virtually.

Moving forward there will be staff in the office on a Tuesday and Thursday for any queries you may have, regrettably there will be no home visits until further notice.

Take care and stay safe everyone, we are still here to support you.

Thanks Sue

May 2020

Retina International

Retina International are currently conducting a study that aims to bring to light the issues faced by Wet Age-related Macular Degeneration (wet AMD) and Diabetes-related Macular Edema (DME) patients and their caregivers owning to routine anti-VEGF injection treatment.

They have recently launched a treatment survey and are looking for participants. If you have wet AMD or DME or you are a caregiver and you would like to participate then please click on one of the following links to complete the survey.

Wet Age-related Macular Degeneration (wet AMD) Patient Survey

Wet Age-related Macular Degeneration (wet AMD) Caregiver Survey

Diabetes-related Macular Edema (DME) Patient Survey

Diabetes-related Macular Edema (DME) Caregiver Survey

If you would like further information regarding Retina International then please click on the following link

April 2020


We hope everyone is coping during these unprecedented times.

At Newcastle Vision Support we are always striving to improve our services. We would appreciate it if you could help us complete 2 surveys using the links below so that we can gain valuable feedback for support and services we provide.

For those that have used our Benefits service provided by Philippa, please can you complete the following survey:

Sue and all the staff would like to thank everyone for continuing to support us.

Stay safe.

March 2020

Office closed

Due to the current situation of the Coronavirus the office is now closed until further notice.   

If you need to contact us, We will be checking our emails from home on a regular basis. Please click on the following link for a list of all our emails .

We will be operating a ring around service to keep in contact with our vulnerable service users. If you need to speak to someone urgently, please call one of the following numbers:

  • Sue 07958171431
  • Jude 07958171424
  • Jacqui 07506720593

The latest updates will be posted on our Website and our Facebook page .

Take care and stay safe.

Sue and all the staff.

March 2020

Group Cancellations

Due to the recent outbreak of the Coronavirus we have made the decision to cancel all groups until further notice.

We would like to assure you that there has been no cases of the Coronavirus within Newcastle Vision Support or MEA House. This decision is purely a precaution in the interest of vulnerable members.

We are still offering telephone support if needed, please ring 0191 2327292.