Your Visual Impairment

What happens in Newcastle

The following is a link to Newcastle Eye Centre at the RVI

Newcastle Eye Centre

The following is a link to Newcastle’s Eye Clinic Liaison Office

Eye Clinic Liaison

The Eye Clinic at the hospital has an Eye Clinic Liaison Officer (ECLO) or Sight Loss Adviser. They can provide you with information and advice on getting the help and support that you need. This includes assistance with understanding the certification and registration process, accessing emotional support and counselling if necessary, and providing information on services in the community, such as referring to your local council and voluntary organisations.

Who you can talk to

There are many organisations that provide free telephone counselling for different eye conditions. For example, age-related macular degeneration is the largest cause of sight loss, and the Macular Society has a team of professional counsellors who have been trained to listen, to help people talk through their feelings, and to find ways of dealing with them. To contact the Macular Society, call 0300 3030 111 or follow this link to their website Macular Society

You may find it useful to look up your condition on the internet to get the details of other organisations that are able to help you.

You can also contact a member of our team to discuss your eye condition and the support we offer.

Knowing more about your eye condition

RNIB has very useful, medically-approved information on individual eye conditions. If you want to know more about your eye condition, the following link should help RNIB Eye Conditions.

Macular Degeneration 

As well as the Macular Society the following link is to our long standing local peer support group  NVS Mac Group


This following link is for  NHS guide to Glaucoma  NHS Glaucoma

Retinitis Pigmentosa

The national organisation is called RP Fighting blindness and the following is a link to its website  Fighting Blindness

A regional peer support  group  called the Northern Alliance Ushers and RP group is led by Colin Hetherington. The following is a link to its Facebook page Northern Alliance RP and Ushers FB page

If you are Asian and have RP you may find the following link to a Facebook group useful  Information for Asians with RP FB Page

Diabetic Retinopathy

The following is a link to the NHS guide on Diabetic Retinopathy


 Visual impairment as a result of a stroke 

The following is a link to the Stroke Association’s guide Visual Problems After Stroke


The national organisation is called the Nystagmus Network. The following is a link to its website Nystagmus Network

And the following is a link to a video explaining what it is Nystagmus video

It’s not always about the things that you can’t see

Charles Bonnet Syndrome is something that can happen to people who lose some or all of their sight. People can see things that are not there (these are called visual hallucinations) and it can be very frightening as people may think they are experiencing mental health problems. The following is a link to the RNIB guide  RNIB Charles Bonnet Syndrome

There is also a national  support group Esme’s Umbrella  and the following is a link to their website Esme’s Umbrella